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March 25th, 2015: RDLA Monthly Webinar

EveryLife Foundation for Rare Diseases
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Agenda

0:38

Jenny Carey

1:18

Director of Federal Government Relations and Alliance Development at the California Health Care Institute

1:41

Congressional Staff Contacts

13:27

The Ensuring Access to Clinical Trials Act

15:58

The Improving Access to Clinical Trials Act

16:22

A Medicaid Medicare Innovation Center Grant

29:35

Access to 21st Century Cures for Individuals with Rare Diseases

31:39

Medicaid Drug Rebate Agreement

36:15

Deadline for the Sign-on Letter

39:02

Senior Director of Public and Government Affairs for the every Life Foundation for Rare Diseases

42:07

The Nih Budget

42:45

Appropriations

45:23

Continuing Resolution

47:38

New Authorization Bills

49:21

What Is the Recommended Rare Disease Party Line Response When We Request Nih Funding To Be Exempt from Sequest Sequestration and Where Should the Budget Be Cut if if Not

51:45
March 25th, 2015: RDLA Monthly Webinar
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2022Jan 13

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